Turner Syndrome Foundation, Inc.

The goal of the Turner Syndrome Foundation (TSF) is to support research initiatives and facilitate educational programs to increase professional awareness and enhance medical care of those affected by Turner Syndrome. Early diagnosis and comprehensive treatments over the lifespan will lead to a brighter and healthier future for all young girls and women with Turner Syndrome. TSF is a registered 501 (c)3 organization

Turner Syndrome is the #1 chromosomal disorder affecting females, approximately 1 in 2000 females are affected. While TS was identified over 70 years ago, there continues to be a lack of common knowledge, information and support afforded to the patient family of these little girls over their lifetime. Presently the average age of diagnosis is 15 1/2, arriving too late for health screenings, treatments, and early interventions. With early diagnosis, adequate care and support, many girls will grow to their full potential; however, that is not the norm, and these children grow up being unsupported and living a less than optimal life. TSF brings together thought leaders, institutions, and organizations to advance communications to make a difference in the lives of these children. We are in need of support to fulfill our important mission to advance communications through education programs. Turner Syndrome Foundation, Inc. provides information, resources, and support to individuals, families and professionals by way of quarterly conferences, local support group meetings, a website, online support groups, monthly e-newsletters, research opportunities, and resources. NJ media organizations such as NJN - Healthwatch , News 12 NJ, and the Star Ledger have produced newsworthy pieces about TS . FREE registry for professionals and the patient family: www.TurnerSyndromeFoundation.org Turner Syndrome Foundation, Inc. is a registered 501(c)3 tax-exempt, nonprofit organization. We are funded through public and corporate donations.